Thursday, June 17, 2010

education

I am writing this blog in an effort to help other parents of children with mental illness who are struggling with the parenting and ensuring that their children receive an education.
Parenting a child with bipolar disorder is extremely challenging, I will attempt to go through the chronology of events that took my son to eventually being placed in a non public school for children with emotional disorders.
What I have learned over the last 12 years, I hope to share with someone who doesnt know, so that you wont struggle to find the answers. One thing to keep in mind when your child starts to act out at home and at school, first take him to a psychiatrist, and get an evaluation and if applicable a diagnoses. The public school system has a duty to educate your child no matter what their academic or emotional circumstance. As soon as you start to suspect that your child may need more than what he or she is getting in the classroom, approach the teachers and counselors and ask for evaluation for IEP. Having an IEP in place is the first step in the process,no matter how far you may need to take it. I have had my child to several therapists and psychiatrist, keep going til you find one that you feel is doing what is right for youur child, and when that changes , because it might, thengo ahead and make a switch. You are going to have to be very assertive, you have to advocate, and insist that things be done. the services are in place, but no one is going to offer the information unless you ask. One of the hardest things I think, is fighting for his rights as a child, while he fights against me in everything I do, but I cannot let that stop me, I have seen first hand how often people with bipolar disorder end up in and out of jail and prison, or being suicidal and even ending their life. It is imperative that I do everything in my power to ensure that his life is as normal as possible.
We got our first IEP in place in the third grade, and that gave him RSP, which means he now has 2 or 3 periods a week in a classroom with a special teacher who ensures he is staying on task with his homework and classwork. The IEP team meets once a year to discuss education and behaviour goals and progress, but you the parent can call for an additional IEP meeting whenever you have something you want to discuss!! with behaviour issue there will be a plan implemented as to how and what the child will do in the event of conflict, or whatever is the concern for that child. For mine its conflict, and this will often result in threats of violence , violence, and profanity and vulgarity.
As things progress, more services will be needed, you can start with county mental health, but may find as I did that its not nesessarily the best. I also found that play therapy, which is what 90% of pediatric therapists will do, is useless, so keep looking til you find what works for you and your child. If your child is being sent out of class repaetedly, or is not keeping up wiht the work, call a meeting and discuss further services.
The next step for us, after 3 years, was a special day class for emotionally disturbed children. some schools have this at their campus,you will have to ask, they have the resources to find out,just keep asking. You can also call the district, and at some point your child will probably be offered weekly sessions with the school psychologist, that person also has some answers, but you will have to ask, the information is not offered up front. I think that the school psychologist is restricted from saying things about your child unless you ask, and have a diagnosis, for instance he canot suggest diagnoses for you. If and when your child has trouble even with the special day class, and is being sent out or home often, its time for another evaluation.
Iwent through a period when my son was being sent out of class for disruptive and inappropriate behaviour every week, and sometimes several times a week. They were sending him to work with the janitor! Ok, he liked working with the janitor, and it helped to calm him down, but lets not forget why our children go to school, for instruction, and the janitor is not instructing, so we had to limit this and make it an insentive rather than a solution. Also,if your child is in special ed , they cannot suspend the child more than 10 times in a school year to a truancy center, and they may try to get around that by giving him or her suspension to home, unrecorded. Make sure everything that is done at school is documented, you may also at this point start keeping a folder at home to document all the things that go on at home, especially if your child is violent like mine.
After being sent out of class repeatedly, it became apparent that my son needed a more restrictive setting inorder to receive his education. Most people , like my family and I, cannot afford the care that is required when it comes to mental health related issues,psychatric care is very costly,as long as your child is under 18 and its interfering with his education, the school system/district will pay for what is neede in order for the child to get an eduation with a diploma if possible, and if a diploma is not possible then with a certificate of completion and training in how to get a job etc.
There is a little known program called AB3632, which covers cost related to a special ed student outside of the normal classroom, again no one will tell you about it, you will find it on the IEP form, next to a box to check, and along with numerous other things that go unexplained.
this program covers almost everything even residential treatment, should you need it. This as you may know costs several thousand dollars per month, the application process takes about 4-6 months, and you have to stay proactive.
We are now in the process of placing our child in a non public school for emotional disturbed, while we wait for the paperwork for residential treatment to be processed. This will happen at the time our son would normally go inot high school, and needless to say, he is not happy about it, however as a parent I have to stay focused on the fact that he needs to get an education, and unless and until he gets his mental health issues under somewhat control, he is only going to continue being suspended and expelled. So this is where we are right now, I hope someone can get useful information, and as things progress I will continue to fill this blog with the information I receive. God Bless you , and your children, remember they are Gods children entrusted to us while here on earth, and we have to do our very best by them for Him.

2 comments:

  1. My son was dx'd bipolar at 7--and me on the same day at 47! We've had an easier time of it, it seems, that you have. What state are you in? We're in CA, in Santa Clara County, where there is an ED program for kids without other learning disabilities.
    The first few years were the hardest. As the meds attempts got better, things were easier. It is possible to have a 3-drug cocktail wihout bad side effects. I'm on one. Also, once he gets out of puberty, things can settle down IF he takes his meds. My son takes his meds because he feels a monster is loose inside him if he doesn't. We have a good rapport these days, and he does participate in his therapies.
    How old was your son at first dx or onset? There are a lot of national organizations online, many with local chapters, that might help you help your son, esp. when your husband is away.
    Let me know if there's anything you need to know and I'll research it for you, or attempt to answer what questions I can.

    Marina F. in the South Bay Area, CA
    BTW, I'm here due to a chain of reposts, finally on Twitter, asking to help you if possible.

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  2. i'm in california, LA county, he was 8 or 9 when first diagnosed, he goes back and forth, one day he knows he has a problem, the next he doesnt, but never wants help. we have tried several different meds, still looking for the right combination. even though he was diagnosed at 8 or 9 the symptoms where always there, I just waited to take him in, because i thought I could " nurture him well"

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